Social networking sites like Facebook and YouTube are often powerful platforms to deliver and receive health care info, particularly for patients and caregivers United Nations agency square measure more and more going surfing to attach and share experiences with others with similar medical problems or issues. However, these sites could lack patient-centered info and might even be sources of dishonorable info that might doubtless do additional hurt than smart, in line with the results of 2 separate social media-related studies unveiled these days at the yank faculty of Gastroenterology’s ACG) 76th Annual Scientific meeting in Washington, DC.
In the initial study, “Social Media for passageway Cancer Survivors,” researchers from the dressing Clinic in FL found that social media is vital|a crucial|a vital|a very important} resource for patients and their caregivers United Nations agency face important treatment selections when being diagnosed with passageway cancer and managing tough biological process and life style problems when passageway surgery.
“We have with success worked with a extremely motivated cluster of sixty five patients United Nations agency are diagnosed with and treated for passageway cancer and Barrett’s high grade abnormalcy,” same investigator Herbert Wolfsen, MD.
Few patient-centered resources square measure offered for families and caregivers facing necessary treatment selections when being diagnosed with passageway cancer, in line with Dr. Wolfsen. He same that the project goal was to determine an internet community through a Facebook cluster to help patients and families anticipate — and deal with — surgical and post-operative challenges when being diagnosed with passageway cancer. The cluster conjointly helps promote unwellness awareness and passageway cancer analysis support within the community.
“Connections expedited through this cluster have typically cause additional contact offline to share their personal experiences and data relating to designation and treatment from the angle of the patient and their family.”
Since 2008 Dr. Wolfsen and his team recruited patients and their families to hitch and participate within the dressing Clinic’s interactive Facebook cluster, that was created to collect a geographically various cluster of passageway cancer survivors. “Many of those patients don’t live shut enough to attend the quarterly support cluster conferences command at dressing in point of entry, that the on-line cluster has allowed patients United Nations agency could otherwise not have the support they have to attach with others United Nations agency share their medical issues,” said Dr. Wolfsen.
Much of the discussion and support revolves around methods for handling post-operative changes, particularly with daily activities like diet, nutrition, and swallowing and regurgitation issues, in line with the study’s findings. The cluster conjointly provides members with several resources as well as access to new medical info via text postings and links to video content on the dressing Clinic YouTube channel, schedules of cluster conferences, treatment choices and recommendation and support for patients, family and caregivers throughout recovery.